Sep 29, 2016Steve & JessFamilyIs God Good?
This past year and a half really challenges our belief as to whether God is good or not (he really is)… We're back in the hospital for very similar reasons as last time. Noah needs…Read More
Sep 1, 2016Steve & JessFamilyNo Pneumonia!
Praise the Lord. No pneumonia. Which means he's healing up fast. Amazingly, looks like we get to leave our second home today!!! The back and forth is hard, but it does help us appreciate the things…Read More
Aug 29, 2016Steve & JessFamilyWe're Becoming Good Friends
We're back! It's a virus! Glad to live so close to our friends at Seattle Children's Hospital.Read More
Jul 29, 2016Steve & JessFamilyVictoria, BC - Noah's First International Adventure
Thanks to Jess's parents Gary & Kim (a.k.a. Gigi & Mimi), we had such a wonderful WHOLE WEEK away in Victoria, BC. Read More
Jun 10, 2016Steve & JessFamilyNoah's First 12 Months
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Mar 26, 2016Steve & JessFamilyFreeman-Sheldon Syndrome – Our Global Community Map
Visualizing Freeman-Sheldon Syndrome around the world. You are not alone! Have FSS or know someone with FSS and want to be added to the map? Send Steve a message.Read More
Dec 11, 2015Steve & JessFamilySleep Study #1
Pre-sleep study feastRead More