Aug 29, 2016Steve & JessFamilyWe're Becoming Good Friends
We're back! It's a virus! Glad to live so close to our friends at Seattle Children's Hospital.Read More
Jul 29, 2016Steve & JessFamilyVictoria, BC - Noah's First International Adventure
Thanks to Jess's parents Gary & Kim (a.k.a. Gigi & Mimi), we had such a wonderful WHOLE WEEK away in Victoria, BC. Read More
Jun 10, 2016Steve & JessFamilyNoah's First 12 Months
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Mar 26, 2016Steve & JessFamilyFreeman-Sheldon Syndrome – Our Global Community Map
Visualizing Freeman-Sheldon Syndrome around the world. You are not alone! Have FSS or know someone with FSS and want to be added to the map? Send Steve a message.Read More
Dec 11, 2015Steve & JessFamilySleep Study #1
Pre-sleep study feastRead More
Nov 15, 2015Steve & JessFamilyJoy and Gratitude out of Stays at the Hospital
We made it home! Noah is doing great. I have a cold after so many sleepless nights. And Jess is amazing. Wouldn't want to be doing this life-on-earth thing with any other family. Thanks to…Read More
Oct 10, 2015Steve & JessFamily4 Months
Grateful for four months.Read More